18 January 2016 : Yo, También (Me, Too)
Isabelle Gueneau and Lorraine Joly hosted the parents’ group at a screening of the film Yo, También (Me, Too) at the Eldorado cinema.
This film handles the topic of diversity in a subtle, humorous, sensitive manner through its hero who has Down’s Syndrome. The viewer listens in on Daniel Sanz's soul-searching about friendship, sexuality, love, freedom and life, and through him, everyone can discover his own human path.
A film that leaves you stronger!
11 October 2016 : Hasta La Vista (See You Later)
The film screening was followed by a debate, co-ordinated by philosopher P. Ancet, geneticist C. Thauvin and psychologist L. Joly. In conclusion, the topic of disability is a social debate that involves everyone and causes each individual to reflect on diversity: that of others, as well as his own. We have discussed sexuality, disability and, from a broader perspective, the instinct of every human being, whether physically/mentally dependent or otherwise, to live and work.
8 December 2016 : The screens of the planetarium “All different; is it because of genes?”
Based on the success of the film “Diagnostic testing for rare diseases”, a public screening was held at the planetarium and the event entitled “All different; is it because of genes?”. The evening began with a screening of “Gabrielle” by Louise Archambault, a film about genetic disability, featuring a young adult in institutional care, who has plans and dreams. The lead character is a young woman with Williams-Beuren syndrome; her soul-searching and her desire to live life without self-denial reverberate in the concerns of her parents and reflect our own, of course... [...]
The film was followed by the screening our film “Diagnostic testing for rare diseases” and a debate on diversity and genetics.
13 April 2017 : Tell me about clinical trials; patients are talking about them
EFHU TRANSLAD, in partnership with “Tous chercheurs”, the AFA (François Aupetit Association) and OrphanDev hosted a public screening on 13 April 2017 of the documentary “Tell me about clinical trials; patients are talking about them”.
Clinical trial specialists answered questions from the audience at the end of the film.
16 May 2017 : Declaration of War
With support from the Groupama “Vaincre les maladies rares (Fight rare diseases) Foundation”, a film-debate was organised at the Eldorado cinema on 16 May 2017 with the film “Declaration of War”, by Valérie Donzelli.
Romeo and Juliet meet on evening in Paris. It's love at first sight. Their love produces a child, Adam. Life is heavenly for the young couple. But then Adam's health begins to worrisome. It starts with minor things like a swollen cheek, followed by more worrying symptoms, like his eyes not moving simultaneously. Romeo and Juliet consult a paediatrician, an ENT specialist, a neurologist, and specialists of every kind. Finally, like a bombshell, the diagnosis is given: 18-month-old Adam has a rare form of brain cancer. Romeo and Juliet's world comes crashing down around them, They prepare to wage a long battle against the disease... The question is [...]
How can they provide their child with supportive care, faced with the ordeal of a serious disease? The story of this couple as told to us in the film is a painful, touching, brilliant one. Their ability to move away from anything that would make them cave in creates room for living and enjoying life's simple pleasures. The discussions that followed, during the debate co-ordinated by psychologist L Joly, paediatricians N Jean and C. Briandet, and M. T. Thunot (Association Coup de Pouce) explored the journeys of these persons fighting on behalf of patients, siblings, parents, families, etc. Not that easy to avoid being overwhelmed with despair, especially in situations involving chronic diseases where constant life-long adjustment becomes necessary. They need energy to avoid exhaustion, withdrawal and isolation. These discussions highlighted the importance of a social connection, and of caring.
22 May 2018 : My brothers
With support from the Groupama “Vaincre les maladies rares (Fight rare diseases)” Foundation, a film-debate was organised at the Eldorado cinema on 22 May 2018 with the film “My brothers”.
It is about two brothers, Eddy and Rocco, who had their heyday on the “Indie Rock” scene in the late 90s. We see them again ten years later on an island, on parade at the head of the local brass band. Their hearts are torn apart and their bodies bruised by suffering, but their happiness will be restored through brotherly love. Numerous topics are discussed: disease, disability and the relationship with one's body, in addition to family relationships which become stronger.
The screening of the film trailer was followed by a discussion with the film director, Bertrand Guerry.
08-09 June 2018 : The International Festival Tour of Films on Disability in Dijon
At the initiative of Lorraine Joly, genetics psychologist, patients’ moms, in association with the Dijon University Hospital Genetics Department, organised last June 8 and 9, the International Festival of Films on Disability (FIFH) in Dijon. This festival attempts to look at disability from a different angle via a selection of original short and full-length international films.
For 2 days, 7 primary school classes, 7 secondary school classes and 172 persons were able to attend the screenings, held at the Olympia cinema, free of charge, and discuss the films among themselves.
Just like in Cannes, on the Friday, at a closed-session showing for schoolchildren, a mixed panel of children with disabilities and another made up of brothers and sisters of patients with genetic diseases picked their favourite by category.
On the Saturday, another selection of films, with discussions following afterwards, was offered to an adult public via registration. First off was the full-feature English film: “My Feral Heart”, followed by a discussion. In the afternoon, a selection of 3 short films was screened, and were also followed by discourse.
The closing cocktail reception which, on a side note, was somewhat of a delightful affair, was organised through the efforts of the “Families of Genetics” association.
To close, the Dijon festival concluded with the screening of a full-length American film, “The View from Tall”, followed by a final discussion.
October 8 and 10, 2019: the second edition of the International Film Festival on Disability - FIFH tour - in Dijon
On October 8 and 10, 2019, professionals from the Genetics and Families Center welcomed Côte d'Or middle and high school students to the Cap Vert cinema in Quetigny to view and discuss a series of short films on disability. The concept of inclusion in our society only makes sense if it is tested against reality. The idea was to challenge students on these subjects so that they feel concerned by stimulating a positive dynamic through these exchanges. The challenge is essential to advance mentalities on the place given to people with disabilities in our society... or how to make it more humanistic! More than 450 young people were able to participate in the Festival with their teachers.
February 13, 2020: a new documentary evening
A new evening of the Planetarium's screens took place on February 13, 2020, in Dijon, for families. This evening sought to explain why it is difficult to treat illnesses with intellectual deficiency thanks to the support of 3 short documentary films followed by a debate.